Death of 24 hemophilia patients in 8 months / A report on the death of hemophilia patients, in the absence and shortage of medication.

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-Monday 2024/12/23 - 12:18
News Code:10540
مرگ ۲۴ بیمار هموفیلی در ۸ ماه/گزارشی درباره فوت بیماران هموفیلی، در نبود و کمبود دارو

Although it is said that these 24 individuals are hemophilia patients registered with the Hemophilia Society of Iran, there is no information about the death of other affected patients.

 

The death toll was unprecedented; 24 hemophilia patients lost their lives in 8 months. They were victims of the absence and shortage of medication.

12 of them had a deficiency of factor VIII, one had factor VII, three had factor I, and one had factor IX. Brain hemorrhages, renal, stomach and gastrointestinal bleeding, cardiac arrest, stroke, internal infections, seizures, cancers, and liver cirrhosis were the causes of their deaths.

Although it is said that these 24 individuals are hemophilia patients registered with the Hemophilia Society of Iran, there is no information about the death of other affected patients. The numbers are certainly higher.

Families of the victims: All our problems started in 2016; precisely when the medication became scarce and then rationed. We were supposed to receive 20,000 units of FibA monthly, but we were only given 2 to 3 thousand units. The shortage of medication had put his life at risk. At the hemophilia clinic of Imam Khomeini Hospital in Tehran, four people died right before his eyes./Ham-Mihan

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